Twenty weeks into life, Hailey was diagnosed with alobar holoprosencephaly (HPE). Further testing showed that she had full Trisomy 13, also called Patau syndrome. Trisomy 13 affects about 1 in 16,000 babies. HPE affects about 1 in 10,000 babies and of those only 3% survive to delivery. With the severity of Hailey's condition, she is given little chance of surviving to term. But our family was dedicated to giving her that chance, no matter how small, and she gave us every hope for the future.
On June 12, 2009, our angel baby was born and delivered into our loving arms. There is where she spent her life and gave us the best 42 minutes of ours. Our journey led us to this moment in time, the moment we met our little girl face to face, and the precious time we shared with her. Now Hailey is safe in the hands of God until we meet again.
God has blessed our family in ways we didn't understand at first. But through our faith and trust in Him, we came to realize just how much purpose Hailey's life serves on this earth. Hailey has unlocked the deeper meaning of faith, hope and love, and has forever changed the lives of many. We are blessed to be part of such an incredible life and incredible journey.
Psalm 139:13-16
For you created my inmost being;
you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.
If we could have a lifetime wish
A dream that would come true
We'd pray to God with all our hearts
For yesterday and You
A thousand words can't bring you back
We know because we've tried
Neither will a thousand tears
We know because we've cried
You left behind our broken hearts
And happy memories too
But we never wanted memories
We only wanted You Author Unknown
My First Christmas In HeavenI see the countless Christmas trees
around the world below.
With tiny lights, like Heaven's stars,
reflecting on the snow.
The sight is so spectacular,
please wipe away the tear.
For I am spending Christmas with
Jesus Christ this year.
I hear the many Christmas songs
that people hold so dear.
But the sounds of music can't compare
with the Christmas choir up here.
I have no words to tell you,
the joy their voices bring.
For it is beyond description,
to hear the angels sing.
I know how much you miss me.
I see the pain inside your heart.
But I am not so far away,
we really aren't apart.
So be happy for me, dear ones.
You know I hold you dear.
And be glad I'm spending Christmas
with Jesus Christ this year.
I sent you each a special gift,
from my heavenly home above.
I sent you each a memory
of my undying love.
After all, love is a gift,
more precious than pure gold.
It was always most important
in the stories Jesus told.
Please love and keep each other,
as my Father said to do.
For I can't count the blessings or love
He has for each of you.
So have a Merry Christmas and
wipe away that tear.
Remember, I am spending Christmas
with Jesus Christ this year.Author Unknown
But Jesus said, "Let the little ones come to me, and do not keep them away; for such is the kingdom of heaven." - Matthew 19:14
