Forty-two minutes...a lifetime of love...

God's Gift...Our Angel Baby

Twenty weeks into life, Hailey was diagnosed with alobar holoprosencephaly (HPE). Further testing showed that she had full Trisomy 13, also called Patau syndrome. Trisomy 13 affects about 1 in 16,000 babies. HPE affects about 1 in 10,000 babies and of those only 3% survive to delivery. With the severity of Hailey's condition, she is given little chance of surviving to term. But our family was dedicated to giving her that chance, no matter how small, and she gave us every hope for the future.

On June 12, 2009, our angel baby was born and delivered into our loving arms. There is where she spent her life and gave us the best 42 minutes of ours. Our journey led us to this moment in time, the moment we met our little girl face to face, and the precious time we shared with her. Now Hailey is safe in the hands of God until we meet again.

God has blessed our family in ways we didn't understand at first. But through our faith and trust in Him, we came to realize just how much purpose Hailey's life serves on this earth. Hailey has unlocked the deeper meaning of faith, hope and love, and has forever changed the lives of many. We are blessed to be part of such an incredible life and incredible journey.

Psalm 139:13-16

For you created my inmost being;
you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.

Sunday, April 12, 2009

Family Updates

Ms. Hailey Marie

Hailey continues to grow stronger (and bigger) everyday! It's hard for me to believe she could be so sick with all that power she has in those legs of hers. Her playtime used to be in the afternoons, it was like she got an energy boost after lunch. She has since discovered the joys of an afternoon siesta, and the fun of pulling an all-nighter. I've taken a liking to her new routine as well. It makes for less trips to the restroom during the day, and for sweet dreams all through the night! Hailey continues to fuel our hope for the future.

Big Brother

What is there not to say about Ryan? He is one amazing, smart little boy who absolutley loves his little sister. Everyday he gives her a kiss and hug. He also likes to make sure Hailey's still in there, but I know he knows she is. He told me the other morning, "Mommy your belly is sticking out!" and laughs (and of course Tim feels the need to join in). Then he tickles her and tells me she's laughing too. That's ok though, because the bigger I get (belly wise), the bigger and stonger she gets.

Tim and I have talked about telling Ryan soon. We feel that he needs to understand that our time with Hailey is going to be different than what we expected. I think the hardest part that will be for him to understand is that Hailey won't be coming home with us. I have finally finished writing the storybook I want to use to help prepare him for what's to come. The books I've found online just don't seem to explain how special this journey really is. I also felt that personalizing it and making it specific to Ryan and Hailey would make it even more special. I also know how smart Ryan is and the right words were absolutely necessary. All I have left to do now is get a scrapbook and put it together. I will be happy to share the story in a later post.

Mr. Under-the-Weather

We found out Wednesday what that unknown virus was Tim's been battling for the past two weeks. It took three visits to the doctor (different doctors) before discovering that he actually has pneumonia. But I'm happy to report that he is finally starting to feel a little bit better! :)

As for me...

I'm just happy to live and love God and my family everyday! There is no such thing as a bad day when you have God and your family to have and to hold.

I hope everyone had a Happy Easter!

Thank you God for the gift of your son, sent to rescue us from living an eternity without you.
But Jesus said, "Let the little ones come to me, and do not keep them away; for such is the kingdom of heaven." - Matthew 19:14