Forty-two minutes...a lifetime of love...

God's Gift...Our Angel Baby

Twenty weeks into life, Hailey was diagnosed with alobar holoprosencephaly (HPE). Further testing showed that she had full Trisomy 13, also called Patau syndrome. Trisomy 13 affects about 1 in 16,000 babies. HPE affects about 1 in 10,000 babies and of those only 3% survive to delivery. With the severity of Hailey's condition, she is given little chance of surviving to term. But our family was dedicated to giving her that chance, no matter how small, and she gave us every hope for the future.

On June 12, 2009, our angel baby was born and delivered into our loving arms. There is where she spent her life and gave us the best 42 minutes of ours. Our journey led us to this moment in time, the moment we met our little girl face to face, and the precious time we shared with her. Now Hailey is safe in the hands of God until we meet again.

God has blessed our family in ways we didn't understand at first. But through our faith and trust in Him, we came to realize just how much purpose Hailey's life serves on this earth. Hailey has unlocked the deeper meaning of faith, hope and love, and has forever changed the lives of many. We are blessed to be part of such an incredible life and incredible journey.

Psalm 139:13-16

For you created my inmost being;
you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.

Thursday, April 23, 2009

Hailey's Hope Coming this Sunday!

On your mark...Get set...Go!

March of Dimes, March for Babies Walk

This Sunday, April 26

Registration starts at 12:30 p.m.
Walk kicks-off at 1:30 p.m.

Memorial Park
Jefferson City, MO

Come on out and take a stroll through the park with "Hailey's Hope"! We also need some supporters to cheer us on, so please come even if you can't participate in the walk. We would much rather have you there then not at all. Our family has been anxiously awaiting the March of Dimes walk, not only because we will be honoring our daughter, Hailey Marie, but because we also have the opportunity to fulfill her purpose in life by helping to save the lives of future babies!

When you come to the walk, please look for our team booth, Hailey's Hope (I promise we'll make it hard to miss). This is where all walkers/supporters for Hailey will register for the walk, sign a "Signatures of Hope" board, dedicate steps, and pick-up and order Hailey's Hope t-shirts. Aside from registering, we definitely would like for everyone to sign your name to the "Signatures of Hope" board so we can treasure this wonderful day and memory with Hailey. You are all a very special part of this journey, and we want to be able to look back on the beautiful lives our daughter has touched.

It looks to be a beautiful Sunday afternoon, but we'll be walking come rain or shine. So let's continue to pray that the rain holds off until the evening, just to be safe. Don't forget to grab the whole family and bring them along to enjoy this inspirational day! There will be fellowship, food, games and more!

We hope to see you there! We would like to meet and visit with everyone who has been following along with us on this journey, and who has given us and Hailey the support and prayer we need to make it another day. We appreciate each and every one of you!

We'll see you Sunday!

* Bring your blankets and lawn chairs.
But Jesus said, "Let the little ones come to me, and do not keep them away; for such is the kingdom of heaven." - Matthew 19:14