Forty-two minutes...a lifetime of love...

God's Gift...Our Angel Baby

Twenty weeks into life, Hailey was diagnosed with alobar holoprosencephaly (HPE). Further testing showed that she had full Trisomy 13, also called Patau syndrome. Trisomy 13 affects about 1 in 16,000 babies. HPE affects about 1 in 10,000 babies and of those only 3% survive to delivery. With the severity of Hailey's condition, she is given little chance of surviving to term. But our family was dedicated to giving her that chance, no matter how small, and she gave us every hope for the future.

On June 12, 2009, our angel baby was born and delivered into our loving arms. There is where she spent her life and gave us the best 42 minutes of ours. Our journey led us to this moment in time, the moment we met our little girl face to face, and the precious time we shared with her. Now Hailey is safe in the hands of God until we meet again.

God has blessed our family in ways we didn't understand at first. But through our faith and trust in Him, we came to realize just how much purpose Hailey's life serves on this earth. Hailey has unlocked the deeper meaning of faith, hope and love, and has forever changed the lives of many. We are blessed to be part of such an incredible life and incredible journey.

Psalm 139:13-16

For you created my inmost being;
you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.

Thursday, March 26, 2009

Walk for Hailey's Hope

The past couple of weeks have been a little busy at our house, so I apologize for not writing as frequently as I'd like. However, during that time our family found yet another meaning and purpose of Hailey's life. Hailey reminded us of how precious life truly is, but it wasn't until the March of Dimes contacted us that I realized there was actually something we could do.

March of Dimes is a truly wonderful organization that is working hard to reduce the occurrence of birth defects, premature births and infant mortality by funding extensive research and education programs across the country. If I can help save even one family from receiving the same news we did, and ensure even one baby a healthy chance at life, then the pain and hurt our family suffered would all be worth it.

Our family is now fully committed to helping March of Dimes achieve their mission to prevent birth defects and infant mortality. Therefore we have dedicated team Hailey's Hope to join the thousands of compassionate teams across the country that support March for Babies. We would like to invite you to join Hailey's Hope in the walk that helps every baby have a healthy chance at life!

On Sunday, April 26, Hailey’s Hope will be participating in the March for Babies walk at Memorial Park, Jefferson City. To register for the walk, visit our team’s web page at, click JOIN THIS TEAM at the top of the page, and you’re ready to go! You can also register at the walk. Registration starts at 12:30 p.m. and the walk kicks-off at 1:30 p.m. A $20 donation per adult is suggested, but any contribution is appreciated to help support March of Dimes in honor of Hailey.

Bring the whole family! There will be games and activities for the kids, t-shirts, and lunch will be served after the walk. Our family would be thrilled to have everyone there to honor Hailey’s life and the miracle of life for every baby!

So our beautiful baby girl is hard at work again, making sure that her purpose in this life is fulfilled. It reminds me of the Rick Warren book "The Purpose Driven Life". It's a powerful book which seeks to help you answer one simple question, "Why am I here?" Hailey continues to answer that question everyday as she brings new meaning to life. It's clear that God sent her here for more reasons than one, and helping ensure healthy lives for future babies is definitely on her 'to do' list.


April 26
1:30 p.m.
Memorial Park
Jefferson City, MO

Please join us and walk for Hailey's Hope, and be a part of this special memory we will forever treasure with our daughter.

Thank you for your support and God bless!

The Glavin Family
Tim, Rachelle, Ryan and Hailey

* You can also make donations online at or send check donations to The Glavin Family, 904 Westwood Drive, Jefferson City, MO 65109. Please make checks payable to March of Dimes.
But Jesus said, "Let the little ones come to me, and do not keep them away; for such is the kingdom of heaven." - Matthew 19:14