Forty-two minutes...a lifetime of love...

God's Gift...Our Angel Baby

Twenty weeks into life, Hailey was diagnosed with alobar holoprosencephaly (HPE). Further testing showed that she had full Trisomy 13, also called Patau syndrome. Trisomy 13 affects about 1 in 16,000 babies. HPE affects about 1 in 10,000 babies and of those only 3% survive to delivery. With the severity of Hailey's condition, she is given little chance of surviving to term. But our family was dedicated to giving her that chance, no matter how small, and she gave us every hope for the future.

On June 12, 2009, our angel baby was born and delivered into our loving arms. There is where she spent her life and gave us the best 42 minutes of ours. Our journey led us to this moment in time, the moment we met our little girl face to face, and the precious time we shared with her. Now Hailey is safe in the hands of God until we meet again.

God has blessed our family in ways we didn't understand at first. But through our faith and trust in Him, we came to realize just how much purpose Hailey's life serves on this earth. Hailey has unlocked the deeper meaning of faith, hope and love, and has forever changed the lives of many. We are blessed to be part of such an incredible life and incredible journey.

Psalm 139:13-16

For you created my inmost being;
you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.

Monday, June 8, 2009

3 More Days

It's Monday night now, which means we only have three more days until Tim and I head to the hospital. It also means we're that much closer to meeting our little girl!

I truly believe that we've made a wise decision in planning for Hailey's birthday. We've found that we are better prepared now that we are focused on that day with a date intact. I'm also relieved that I don't have to worry anymore whether or not everyone will be able to make it for her special day. Dr. Dodson will be there when we go to the hospital and when we deliver. Our amazing photographer and friend, Amy Knollmeyer, has graciously cleared her schedule to capture every moment of Hailey's life. Our church and the funeral home know the game plan now. There was just so many things that I was worried about, things pregnant mommies don't expect to worry about when they're about to have a baby. I know I've had four months to adjust to all the planning and preparing, but sometimes it gets to me that I'm planning a birthday and funeral all at the same time, and it's stressful. But my worries are no more, thanks to the wonderful people who have made themselves readily available for us. Now I just get to concentrate on the amazing day that lies ahead. I especially think this time has been beneficial for Tim and Ryan. Over the past four months, I have had Hailey to remind me of what is and what is to come. But for them, they've only had my big belly to look at. Now I think they are both in the zone, and it's all coming together, as we look forward to meeting Hailey in just a few short days.

Of course Ryan is very excited to finally meet his baby sister. We've talked about it quite a bit over the weekend, and when I asked him questions he knew the answers. He knows that Hailey is going to live up in heaven with Jesus. We talked about her birthday party, and he knew what he was going to help with - which is everything. He's in charge of giving the presents to her, helping her open them, blowing out the candles, and eating the cake. He also wants to play his guitar for her which will keep us all entertained. I think he understands how special that time is going to be with her, but I know that there will be times when he questions why she's not with us. Tonight he asked me if she was going to sleep on the couch or in her bed. He was so serious that I just had to smile.

Thursday I plan on taking Ryan with me to pick out a little birthday cake and some balloons that he will bring to the hospital on Friday. That evening we are going out to eat with our family to have a pre-birthday party. I've been hooked on McDonald's and McAlister's this pregnancy, and since I've had more than enough McDonald's to last a lifetime I think we'll be eating at McAlister's...although...I could fit McDonald's in for lunch! But that will be a good time, and I'm looking forward to it. We also plan to take Ryan along with us so he can see the room where Hailey will be born. That way when he comes back on Friday he will be a little more comfortable with everything.

Well that's all the updates I have for now, but I want to thank everyone so much for the extra prayers this week. I believe it's giving us the strength to focus on the joy of Hailey's birthday!
But Jesus said, "Let the little ones come to me, and do not keep them away; for such is the kingdom of heaven." - Matthew 19:14