Forty-two minutes...a lifetime of love...

God's Gift...Our Angel Baby

Twenty weeks into life, Hailey was diagnosed with alobar holoprosencephaly (HPE). Further testing showed that she had full Trisomy 13, also called Patau syndrome. Trisomy 13 affects about 1 in 16,000 babies. HPE affects about 1 in 10,000 babies and of those only 3% survive to delivery. With the severity of Hailey's condition, she is given little chance of surviving to term. But our family was dedicated to giving her that chance, no matter how small, and she gave us every hope for the future.

On June 12, 2009, our angel baby was born and delivered into our loving arms. There is where she spent her life and gave us the best 42 minutes of ours. Our journey led us to this moment in time, the moment we met our little girl face to face, and the precious time we shared with her. Now Hailey is safe in the hands of God until we meet again.

God has blessed our family in ways we didn't understand at first. But through our faith and trust in Him, we came to realize just how much purpose Hailey's life serves on this earth. Hailey has unlocked the deeper meaning of faith, hope and love, and has forever changed the lives of many. We are blessed to be part of such an incredible life and incredible journey.

Psalm 139:13-16

For you created my inmost being;
you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.

Friday, June 5, 2009

Hailey...Coming Soon!

Over the past week I've been juggling this thought that our meeting with Hailey was coming soon. Yesterday that feeling was so strong that it couldn't be ignored. So I did a lot of thinking and praying. I've always thought that I would continue on through the pregnancy until Hailey let me know it was time. I would wait until I went into labor, or alternatively, until my inner being lay quietly at rest. However, that plan was challenged as this tugging on my heart and mind grew more intense. I questioned where this second opinion came from, but after much prayer I believe it was God nudging me to get ready, to be prepared.

So we've decided that next Friday we will take the first step towards meeting our daughter face-to-face. We will go in Thursday night and induce then on Friday morning. At that time she will also have defied the odds and the 3% chance that was given for her to survive to term. Her strength and love has endured! So during this next week of anticipation, we will be packing our bags and preparing our hearts to spend the most precious time of Hailey's life. And if Ms. Hailey decides to greet us sooner, then we will be ready.

I can't tell you how nervous I am, and maybe not for the reason you're thinking. I am nervous because I'm going to finally meet the person who has forever changed my life and who I am. I've never asked myself this before now, but who would you like to meet most in this world? Who do you look up to? Who inspires you? Who's made you think about the depth, the reality, the truth of life? For me, that person is not a world leader or missionary. It's not a famous activist or saint. It's not a celebrity or sports legend. It's this itty bitty gift inside me who enjoys keeping me up all night and sharing my energy all day. It's a little girl with a face that reflects pureness and beauty, and a heart that displays strength and courage. It's my angel baby! And soon I'll get to meet her and hold her in my arms. I'll be speaking my first words to her and spending her whole life with her. What an honor, what a joy that will be! *Side note: Of course the ultimate being I'd like to meet, and that I plan to meet face-to-face someday is and always will be my holy father. The One that created me, died for me, and blessed me with the most amazing gifts life has to offer.

So that's the headline: "Ms. Hailey Marie Glavin...Coming Soon!"

We will keep you posted on when our angel is delivered into our arms and into God's hands.

With all our hearts, we thank you for sharing your footsteps on this journey. We thank you for your love and support. Your prayers have made it possible for us to embrace another day.

In God I Trust,
But Jesus said, "Let the little ones come to me, and do not keep them away; for such is the kingdom of heaven." - Matthew 19:14